EoE Toolkit

Eosinophilic esophagitis (EoE) is a chronic, allergic inflammatory disease of the esophagus (the tube connecting the mouth to the stomach). It occurs when a type of white blood cell — the eosinophil —appears in the esophagus in elevated numbers. Eosinophils are not normally found in the esophagus, and they cause injury and inflammation to the tissue. This damage may make eating difficult or uncomfortable, potentially resulting in poor growth, chronic pain, and/or difficulty swallowing. EoE is a chronic and lifelong disease, but with proper ongoing care and treatment, those with EoE can manage their condition.

This kit was developed by the American Partnership for Eosinophilic Disorders (APFED) to help those affected by EoE. APFED is a nonprofit organization that assists and supports patients and families affected by eosinophil-associated disorders, such as EoE, by providing education, creating awareness, supporting research, and promoting advocacy.

This kit includes:

• Getting started checklist. Navigate a new diagnosis with this checklist to guide you as you learn.

• FAQs. Read answers to questions that are commonly asked by patients and caregivers.

• Glossary. Learn terms commonly used when discussing EoE.

• Types of specialists. Learn about the team of doctors or specialists that you may need to manage EoE.

• Research progress. Discover how EoE research is progressing and learn about recent discoveries.

• Tips and strategies for successful diet management. Explore practical strategies for diet management.

• Tips for living well. Access tried and true tips to help improve your quality of life with EoE.

• Helpful resources. Connect with others and tap into a supportive community.• Shop. Spread awareness for eosinophil-associated diseases with items in APFED’s Gift Shop.

• Community fundraising. Learn how to get involved and support the patient community.

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We hope these resources will help you be better prepared to manage your EoE diagnosis. Visit the APFED website for more information and tools.